Public and Patient Involvement and Engagement Manager – STEADFAST Project

Diabetes UK

About the job

Public and Patient Involvement and Engagement Manager – STEADFAST Project (FTC 31 August 2022)

Job Introduction

Diabetes UK has a strategic priority to cure and prevent diabetes. Diabetes UK and Cardiff University are working together on the STEADFAST project, which will build on and develop best-practice public and patient involvement and engagement (‘PPIE’) frameworks for research, using sensitive data across health and social impacts at scale. You will lead all the PPIE aspects of the STEADFAST project. We are using education outcomes for young people with diabetes as an exemplar in order to develop this PPIE framework. You will ideally have experience of working with patients and the public to support research. Given the rapid timeframe of the project (to 31st August 2022) we would welcome secondments and will consider consultancy opportunities.

The STEADFAST project is a funded by UK Research and Innovation as part of the DARE UK programme, which seeks to deliver next-generation digital research environments across the UK research councils.

Interview Date: 31 January 2022

Role Responsibility

The PPIE Manager, STEADFAST project will lead all patient and public involvement and engagement activities for the project, working with our partners Cardiff University, Egality Health and others. You will work with Egality Health to develop and run workshops to explore the views of young people with diabetes and their families around the use of sensitive data in research. You will build on existing best practices in PPIE (such as the NIHR Involve Framework) to develop a toolkit for PPIE to support research which uses sensitive data at scale. You’ll work with a wide range of partners and stakeholders such as Diabetes Research Steering Groups to consult them on their views. You will provide input into the final report which will inform requirements for the DARE programme overall and help the UK to deliver cutting-edge health and social science research using large-scale datasets.

The Ideal Candidate

This is an exciting and innovative opportunity for a talented individual with PPIE or related professional experience, for example working in PPIE for a community group, university or charity. You will be used to communicating with diverse sectors of society and adapting your language and communications for the relevant group. You will be adept at facilitating workshops with patients and members of the public to elicit their views on complex topics, such as the use of sensitive data for research. You will be a flexible and highly self-motivated individual, able to achieve to tight deadlines with limited supervision in a complex project with multiple partners. Ideally you will also have a good working knowledge of information governance related to the use of data in health/ biomedical/ social sciences research.

Please note that all job offers are subject to you providing acceptable evidence of your eligibility to work in the UK.

Package Description

What we can offer you:

  • Generous annual leave starting at 25 days plus bank holidays
  • A Cash Healthcare Plan (giving you up to £1,500 towards a range of out of pocket health expenses like new glasses, dentist, chiropractor or osteopath appointments)
  • Early finish Friday and flexible working as part of our approach to activity based working
  • Discounts on gym membership
  • Employee assistance programme to give you support on any issues that come up in life
  • Annual season ticket loan* (on completion of your probation period and if contract is permanent or longer than 12 months)
  • Very active social scene including sport teams, gardening and other activities
  • Generous pension provision, life assurance and income protection insurance
  • Cycle to work scheme* (eligible for scheme if contract is permanent or longer than 12 months)

*Some benefits aren’t available until you’ve passed your probation period and are dependent on the length of contract.

About the Company

For nearly 5 million people with diabetes in the UK, there’s no day off. At Diabetes UK, we fight day in, day out for better care, treatment and support. We won’t stop until diabetes can do no harm.

With more people than ever living with diabetes and millions more at risk of developing type 2, our work has never been more needed. We make sure they get the care and support needed to live well with diabetes and avoid devastating complications.

We fund critical research, which has led to life-changing discoveries – like the first insulin pen and programmes to put type 2 diabetes into remission. Now, we want to do this for everyone and find a cure.

We can’t do any of this without you. Our staff are passionate and determined about helping everyone affected by diabetes. For over 85 years, they’ve been behind vital policy changes, as well as new treatments and technologies to make living with diabetes easier every day.

But there’s more to do. And you can be part of it.

We’re a really diverse bunch and we recognise and respect your value as an individual. As well as helping people with diabetes, you’ll be part of one of the top 30 Best UK Charities to Work For, and one of the top 75 Best Large Companies in London.

We’re committed to protecting and promoting the welfare of children and adults at risk, and we need our staff and volunteers to support this.

Our vision is a world where diabetes can do no harm. Join us today, and together, we can make that a reality.

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